Thursday, April 3, 2008

12

I just got back from my meeting with the doctor. He said the CAT scan looked good. Based on the results, I will get 12 rounds of chemo (woohoo) and then radiation treatment after that. It is what I had hoped for, and expected. The super results would have been no radiation, but that was always very, very unlikely. The bad results would have been 14 or 16 rounds of chemo. So, I am really happy it is what it is! This means I will get my last chemo treatment May 2. Then I'll have 4 weeks off, and sometime in June I'll start radiation treatment, which will last for about a month.

The lymph node masses in my chest are still shrinking, which is good. The one big mass is down to about 6 cm (it was 7 before and 14 in the beginning), another mass that was 3 cm is down to 1.5 cm. 1 cm is normal. I asked why the big one hadn't shrunk more, and he said there is a lot scar tissue there that could take years to go away.

I have also been doing some research about what might be causing my lung irritation. I asked how he knew that it was not "Bleomycin-induced pneumonitis" - I bet doctors hate the Internet sometimes :-) Bleomycin is one of the chemo drugs I get and it can, in some cases, cause pretty serious lung problems. He explained that they look at a number of factors, how the patient feels, how the lungs sound, xray, CAT scan and the lung test I get next week. So far, the only sign of any lung problem is how I feel, everything else looks and sounds normal. So that's good. He also said that for them to decide to stop the Bleomycin treatment, my lungs would essentially have to be so bad that they could hear me wheezing and gasping as soon as I walked in the door. I guess its what you call the lesser of two evils.

All in all it was a very reassuring meeting. And best of all, I can start counting down!

8 comments:

Anonymous said...

YOU MADE MY DAY!!!!! LET"S CELEBRATE. I'll babysit and you and Mathilde PARTY!! oops...I guess that will have to wait until after your chemo tomorrow.

Anonymous said...

It's been a l-o-n-g winter... Nice to know that summer is just around the corner!!

Great news!

Anonymous said...

Kevin,

I am so happy to hear that the end is finally in site! It must be a relief to see the light at the end of the tunnel and be able to start counting down. Still, I can’t imagine you are looking forward to tomorrow… I want you to know that I will be thinking of you as I re-shave my head in a continued symbolic sympathy shave. As trivial as we have all made the hair cutting out to be I do want you to know that I think of you deeply every time and I am there with you in my heart and mind.

Reading your blog I continually marvel at your positive attitude and outlook on all this. You, Mathilde and the girls are all being so strong and courageous that it blows me away. I had tears in my eyes this morning reading about Anna’s dream and the follow-up conversation. Thank you for sharing.

As you get ready for tomorrow and the weekend please know that I am thinking of you and holding my breath until this is all over and “you have your hair back, but not all of it, and everyone is happy”.

I love you,

Scott

Ben said...

It sounds just great - we're so happy for you! and even though you lost your hair, you never lost your good sense of humour. Keep that one going! Did you decide on the hair that won't have to come back? Love from Pernille and the kids!!

Heather Reid said...

Kevin,
Your news is great! Not to freak you out, but be sure to listen to your body especially if it continues to tell you something different than what the doctors say. Bleo is a nasty drug on your lungs and I unfortunately am one who took a big hit to the lungs because of it that is still haunting me. Never underestimate little changes in how you feel and make sure your doctors hear about them!
Keep fighting the fight!
Heather

Anonymous said...

Woo WHO! I am smiling ear to ear!

Anonymous said...

This is the best news! Now that your Mom has recovered from her trip, you're all probably dancing around, even though I know that you personally aren't feeling great with that poison coursing through your body. As others have said, your blog is delightful, both fun and heart-rending at times. Someday we'll all read it with more detachment -- as a really accomplished record of this rough time in your life. Guess that's the critic in me speaking, but it's still true. Meantime, the countdown begins!

Your buddy in chemo -- Aunt Sara

Anonymous said...

Great news Kevin! I'm here with m mom trying to leave comments on your blog and feeling hopelessly unsavvy and nearly 40. Alas. Congratulations on the news. Best best to you and the kids and Mathilde. xoxxo Jenny